Tag: honesty

Somewhere Over the Rainbow: Light, Acceptance and Life


I’m on a three month sabbatical, taking time to work a little on Todd after a very rough 2013. I’m doing some reading, volunteering, meditating, and also having some fun…traveling a bit, and enjoying the many blessings in my life. Overall it’s been a very enlightening and freeing experience. I had no concrete expectations of the time. I made out some general goals, but am also leaving myself open to what presents itself and how life unfolds.

I recently started to listen to some past sermons from Broadway that I missed in 2013. I’ve been a member at Broadway since 2005 or 2006 I think. It’s my community center, much more so than a church. I’ve found a deeper spiritual health and grown in my understanding of community – well beyond the conservative, fundamentalist community I lived in during my college years. I’ve found tremendous freedom in being “out”‘as a gay man, where my sexual orientation has no bearing on my relationships. I’ve also openly talked about my struggles with addiction and relapse – drugs and sex – and found acceptance, encouragement, support and a general absence of judgement. It truly is a unique beacon of hope, a gift…the culmination of many life experiences bringing me to the point where I’m able to discover my own voice and celebrate my gifts and passions within a community.

Having said that, there’s one recent shadow that somewhat hangs over me – a source of shame and self-doubt; a source of fear of rejection that holds me back sometimes from living fully into this life before me. On one hand, I have many examples thru family and close friends of acceptance and love around this topic. And yet it’s a topic that I guard close, and don’t share as freely as my love of travel, my passion for photography, my addiction to crystal meth or my felony record.

To set the stage, here is the first sermon I started to listen to from Advent 2013.  I missed this sermon….but I don’t believe it’s a coincidence that these words from Mike Mather were the ones I first stumbled upon during this sabbatical podcast marathon:

“Some people who are HIV+ are so ashamed, so afraid of how people will respond that they have not told their families or those who love them. This is to remind everyone that community is where you experience love. Peace is not the absence of violence and shame, but the awareness of possibility and grace. There is guilt and shame that each one of us carries, that holds us back from receiving love and support that is present even when we don’t see it…

“I have done funerals for individuals who have died of AIDS related causes. Sometimes they and their families have asked me not to speak of it.”

“They talked of the shame they had…

Somewhere over the rainbow? What does it mean to live in a community, a city, a congregation, where we can talk about these things and people can know love, grace and freedom from shame. That freedom, people as yeast in the community….listening, offering love, grace, acceptance and welcome. It means we see somewhere over the rainbow and we are there.”

So here’s more of my story….

In early 2012, during a brief hospitalization, I was diagnosed with HIV – within weeks of being infected. Through the grace of my Higher Power, I landed with one of the top HIV/infectious disease specialists in the State. We immediately started me on medication with a three-in-one-pill “cocktail.” By January 2013, my blood tests showed the HIV virus to be “undetectable” in my bloodstream. This means that the HIV plasma viral load is below the lower limit of detection for the particular test assay that is being used. To give you a reference, in five days between the initial tests in early 2012 during my hospital stay, my viral load went from 700,000 parts per unit to 2 million parts. This shows me both how rapidly the virus can spread without treatment, and how relatively quickly the new medications can work, brining my load from over 2 million to less than 20 parts in about 9 months. I was also fortunate because of the early diagnosis and quick treatment: my CD4 count (a general measure of a healthy immune system, in any person) has always stayed within the acceptable ranges of 900-1,100 (hence the term often used “healthy.”) (Any of us, with or without HIV, will show natural variation over time with just the normal ebbs and flows of general health.)

Now that’s the emotionless science of the matter. Let’s talk reality now:

  • I will have to take medication for the rest of my life, to keep my viral load undetectable and my immune system healthy. There are other things, like exercise, flu and pneumonia shots, watching my stress levels, and general health tips we all should follow that I will need to heed more seriously
  • The first night I came home from the doctor, knowing my diagnosis with pill in hand…I sat alone in my living room, staring at the pill. Once I took it, there was no stopping taking it… Akin to taking only part of an antibiotic regimen, it can actually lead to developing a more potent, drug resistant stream. I was scared and alone…
  • While I’m “undetectable and healthy,” I am still HIV+. I am not cured. As I should have been before, I must practice safer sex, to reduce the chances of infecting other people. Granted, with my low viral load, I’m about 96% less likely to infect someone than when I was untreated….but not 100%. And notice I said safer sex. There is not nor ever has been such thing as safe sex. Just safer.
  • Being in recovery gave me a lot of great tools like the Serenity Prayer and a spiritual life, as well as support from my family and close friends. Even 5 years ago, I would have been a lot more isolated, ashamed and at risk… My sister, brother, mother and father all know about my status and my health. For that I’m grateful beyond what you can imagine.
  • I was able to share with my mom that my viral load was undetectable – a huge milestone – a week before she ended up dying of a heart attack. I had great love and support from her, and my family…and the closure I was able to have with my mom from being honest and transparent brought me great peace when she died, knowing that we had everything out in the open.
  • I have experienced hateful and hurtful comments and reactions from men I’ve talked with about dating, who have rejected me because of their fear and ignorance of my status. And to be honest, when I was HIV negative, I was equally afraid and uneducated. While I never said hateful things, I would not consider dating someone or having sex with someone who was HIV+, regardless of their relative health and ability to practice safer sex. I now experience that same “silent rejection,” and regret that I failed to learn more, love more and see these men as human beings, worthy of love, acceptance, compassion and understanding.
    • Here is the site I was given by my nurse practitioner for reliable information on the internet for HIV/AIDS http://www.thebody.com
  • I have a fear of being alone, of not being in another committed relationship  again, of not experiencing love because of my status. My work on self-acceptance and self-love is now heavily and most influenced by my status.  I’m learning to not rely as much in external validation…but it’s hard.  I can not lie.
  • When I watched Griffin and Phoenix, I bawled for the first time after my diagnosis…I mean really deep, gut wrenching sobbing….fully feeling the deep loss, grief and fear that comes with “losing” a part of my health
  • HIV is not a death sentence. By following medical care and treatment regimes, I can live a full and exciting life. In the US, I’m told, more people now die from complications related to diabetes than of HIV/AIDS related complications.
  • I’m lucky that the strain I have is not already resistant to any of the main categories of HIV medications on the market. Over time, I may develop resistance (hence the regular blood tests), at which point I will need to switch medication.
  • Until Obamacare came along, I could be refused health insurance based on a pre-existing condition. I was refused healthcare when I left my last employer, by both private and state insurance. Fortunately, the State of Indiana has options for those like me, enabling us to get health insurance to cover the $2000/month medication costs and twice annual routine blood tests.  Because of heroes like Ryan White and others, Indiana is one of the best places to live and get comprehensive care for HIV/AIDS. Wow.

So there. I’m out. Again. I’m only as sick as my secrets. And as Mike preached, the more we talk about topics like this, the more we get them out in the open, the more the shame and darkness is overcome, replaced with love, acceptance and hope. This disease doesn’t define me anymore than my sexual orientation, my recovery, my criminal record, or my work. I’m a human being, a 45 year old man, a son, brother, uncle, cousin, nephew and friend. Oh by the way, I ride a Harley and have a tattoo 🙂

Thanks Mike. I love you brother.

http://www.broadwayumc.info/audio/12-01-13_Sermon.mp3

 

Save Yourself


So I took some flack on my recent post, “Hosting a Pastry Chef: A Silver Lining from my Past.”  A mutual acquaintance of C. contacted me…and quite bluntly, I don’t trust him, or his motives.  C. had even told me in one of our last conversations before he violated his probation and went back to prison, “If he contacts you, just ignore him.  I’m sorry he’s bothering you.”

Well this individual thought my post wasn’t honest in fully disclosing all the details and specifics about my using, and that I was judging C.’s recovery/sobriety.

First, the irony of the two statements was lost on him.  He thought I was judging C’s recovery, and yet then…he turned around and “judged” my recovery.  Enough said.  I have only my HP to answer to.

Second, it was not my intention to make it sound like I was better than C., or less than.  We both are recovering addicts.  Relapse is part of my story.  The bottom line is we only have today.  And that’s enough.  Full stop.  So, if it came across to others as if I was judgmental, let me be clear:  I’m human, C’s human.  I’m not perfect, nor is anyone.  I don’t consider my recovery better (or worse) than anyone’s.  The only standard I have is my own, and I only have today to worry about.  Full stop.

Third, while at this time, I choose not to have this person (or others from my past…) around because of the risk that I will use again, or allow myself to be taken advantage of…that doesn’t mean these guys are bad people, or beyond hope of change.  So the door is always open to reconnection in the future, if I feel that the risk has reached a reasonable point – and that I’m more confident in my recovery and choices.  So, if C. or any others ever read this and wonder “is the door closed?”  — absolutely not.  (Now, I may not choose to let you stay here in the future, based on my experience and self-awareness of what I’m able to handle.  But, that doesn’t mean a friendship is out of line, or that I don’t care and want the best for you.  But, my trust must be earned back through actions…)

Lastly, my post was completely honest.  There was nothing false in any of my statements.  Having said that, I don’t necessarily have to disclose every detail, every timeframe, every nuance for a story to be “truthful.”  There are aspects that are private, that are relevant in other situations or audiences, and again: see the earlier comments.  I have one to answer to: my HP; I do not compare or contrast my recovery to other’s.  It’s not better or worse.  I tried to stay focused on facts, and lessons that I took away from the experience – including especially (his gifts, passions, and things I learned from him.  But the facts also included lies, deception and being taking advantage of (which clearly means that I let myself be taken advantage of).  As my mom always said, “it takes two to pick a fight.”  So, I’m neither blameless, innocent or perfect.  But, this was my story – my insights.  As a friend one shares:

“All of my stories are true, and some of them actually happened.”

The real lesson in these stories (as I share more…) is that I can only save myself.  The Serenity Prayer reminds me:

“grant me the serenity to accept the things I can not change (usually other people, places, things…), the courage to change the things I can (me, my actions, my beliefs), and the wisdom to know the difference.”

As I love music and see certain songs as gifts from the Universe to guide me and remind me of experiences, or Truths, let me close with a clip from my friend (!) Garrison Keillor and Suzy Bogguss, a frequent guest on his radio show (and many of her songs have touched and moved me…hmmm).  This goes for C., M., J., G., and others who I’ve tried “to save…”

Lessons from my youth: Starlight Express


Earlier this month, I shared about wanting to shift some energy and focus to this question of self-worth, moving on from a period of grief and feeling some loss in my life.

A friend of mine were talking about some of our life experiences, particularly around relationships.  And the question we put to ourselves centered around some of the choices we’ve both made – relationships or benefits that we’ve “settled for.”  On one hand I know that I want (and deserve) better.  But, on more than one occasion, I’ve found myself in a situation where I was some how lowering my expectations, accepting a connection with someone that wasn’t meeting some of my fundamental needs or aligning with some of my core beliefs for life.  So, it begged the question, “why don’t I believe that I deserve better?”  “How do I learn to love myself?”

With the help of some other conversations, I’m beginning to see things more clearly – re-learning some lessons or insights from my past, coupled with some new understanding…but clearly, things I haven’t internalize enough to “change my inner voice” or belief system.

I crave external validation.  I’ve sought it through work or career, through relationships (will he love me enough…), input or complements from other people, drugs and sex…and the list goes on and on.  It even includes religion, spiritual groups, recovery groups, etc.  And each time, I end up being let down, unfulfilled.

If I expect or rely on what other people think of me, then I will be disappointed.  First, I’m not likely to get enough feedback to keep my centered, confident, connected…  Second, I run the risk of overreacting when someone’s opinion or thoughts of me are negative or harmful…  And for this recovering gay addict – which brings enough baggage and self-identity issues/risks as it is – that can be dangerous.  Life has proven that through relapse and behavior that has put my life and health at risk.

The natural conclusion from this (he says like it’s easy or second nature…not!) is: find my own inner strength.  That doesn’t mean isolate or disconnect from others.  We are social beings – we are meant to be in relationship, connection with others.  And, that doesn’t necessarily mean marriage or long-term romantic relationships.  We’re meant to have friends, best friends, acquaintances, etc.  And at times, we need their guidance, insight or perspective.  But if we rely only – or first – on that, as a replacement for our own self-confidence and inner strength, we fail… At least, for me, that is my experience.

It also stuck me that Love is an action – not a feeling.  So, what can I do (or say to myself ) to reinforce the courage, strength, experience and gifts that I posses?  For this person – for whatever reason – though I’m generally an optimist than a pessimist, nonetheless, my inner voice – my instincts – my first reaction – is to discount myself, my abilities, my worth.  So, if love is an action, I need to ignore my instincts, not listen to my first reaction or thought, but instead, dig deeper…answer that initial voice with positive reinforcements, facts, truths, experiences from my past that counter that initial self-doubt.

I spoke with a friend who, though not spiritual nor a believer in prayer, finds a lot of strength from music and poetry.  I love music as well – I have certain songs that connect with my emotions and experience and can either bring me “up” or bring me “down.”  So, she encouraged me to keep some of those on hands, and pull those out when I need encouragement.  Sometimes, in those moments of self-pity or self-doubt or loneliness, I’ll grab my “Sad Playlist” on iTunes.  Hello!!?!  No wonder I can, at times, sink even deeper into self-pity.  Instead, develop and grab a “Upbeat Confidence Playlist” and allow the music and word to sooth my soul, to coat me with peace and joy.  With my spiritual background, some of those songs are from my faith experience.  But, they also include  music from the likes of Cher, Sting, and Dolly Parton.

So, I have some new tools in my toolbox.  A lens that I’ve used before, but discarded, through which I can choose to see life, see myself.  With that, I’ll close with two particular songs I’ve been gravitating this past month, which I shared with this friend as concrete examples of what I could be using to lift my spirits…

I Starlight Express/I am the Starlight

Music by Andrew Lloyd Weber / Lyrics by Richard Stilgoe

When you good nights have been said
And you are lying in bed
With the covers pulled up tight
And though you count every sheep
You get the feeling that sleep
Is going to stay away tonight.
That’s when you hear it coming
That is when you hear the humming of the
Starlight Express, Starlight Express,
Are you real, yes or no?
Starlight Express, answer me yes.
I don’t want you to go.

Want you to take me away
But bring me home before daylight
And in the time between
Take me to everywhere
But don’t abandon me there
Just want to say I’ve been.
I believe in you completely
Though I may be dreaming sweetly of the
Starlight Express, answer me yes.
I don’t want you to go.

And if you’re there
And if you know
Then show me which way
I should go.
Starlight Express, Starlight Express,
Are you real, yes or no?
Starlight Express, answer me yes.
I don’t want you to go.

* * * * * * *

Only you have the power within you.
Just believe in yourself –
The sea will part before you,
Stop the rain, turn the tide.
If only you use the power within you
Needn’t beg the world
To turn around and help you
If you draw on what you have within you
Somewhere deep inside.

Rusty you’re blind, look in your mind –
I’m there. Nothing’s new
The Starlight Express is no more nore less
Than you Rusty. I am you.
I’m you and only you

I Wish That I Could Show You

Music and Lyrics by Barbara McAfee
Based on a quote by Hafiz http://www.barbaramcafee.com/lyricsworldofwonders.php

I wish that I could show you
Whenever you are lonely or walking in the dark
The astonishing Light of your Being