health – The Magical Storybook of Professor Peacock

Understanding the Emotional Impact of an HIV Diagnosis

“It took me nine years to really begin processing my diagnosis.”

When I was first diagnosed with HIV, I didn’t fully grasp how traumatic that moment was. I understood the medical facts, but what I didn’t understand was the grief – the dreams I thought I lost, the fear of stigma, and the quiet loneliness that followed me for years.

It took me nine years to finally begin dealing with my diagnosis. Nine years before I let myself acknowledge the loss, the shame, and the resilience I would need to rebuild my life. Looking back, I can’t help but feel that the system failed me—or at least, it could have done better.

We don’t just need medical care after a diagnosis. We need mental health care too.

Imagine if, six months after someone tests positive, their care coordinator or peer HIV navigator sat down with them for a simple mental health screening. Not a rushed checklist, but a real conversation. A chance to ask: How are you coping? What’s hardest for you right now? Where are you finding strength, and where do you need support?

I recently used a tool that reminded me how powerful those questions can be. It’s a simple worksheet that invites people living with HIV to reflect on different areas of life: identity, health, stigma, relationships, hope, and emotional wellbeing. In a support group, we each scored ourselves, shared our highs and lows, and talked about what mattered most. The therapeutic value was extraordinary – not because of the paper itself, but because of the way it opened space for one person to help another. HT to Robin who helped author this tool.

Hiv Discussion Worksheet (1)Download

That’s why I want to share this tool, not as a solution in itself, but as a conversation starter. It can be used by providers, peer navigators, or anyone supporting people living with HIV. It creates an opening to talk about the emotional journey, not just the lab results.

For me, it shouldn’t take nine years to reach that point. If we build mental health check-ins into HIV care – whether at six months, a year, or whenever someone is ready – we can help people grieve, heal, and find resilience much earlier.

Because living with HIV is not just about managing a virus. It’s about reclaiming hope, rebuilding purpose, and reminding people: you are more than your diagnosis.

Keep tellin’ the story,

Professor Peacock

Note: These are my thoughts and my story. I used AI to make helpful edits to my ramblings and online journaling, including some organization to be more blog-friendly. AI created the featured image used in my blog.

I Don’t Need a Specialist Anymore — And That’s a Good Thing

When I was first diagnosed with HIV in 2012, the idea of seeing anyone other than an infectious disease specialist would have felt reckless, even dangerous. This was before PrEP, before U=U. Specialists were the gatekeepers – the people who knew the ever-changing science, the ones who gave me the sense of being in the safest possible hands. For a long time, they were the difference between life and death.

So when I learned today at my routine HIV lab follow-up that the Damien Center is shifting away from relying on infectious disease doctors, and instead training primary care physicians to handle HIV, my first reaction wasn’t celebration. It was shock. Fear. Even a little sadness. A part of me wanted to feel special, to believe that my care required the highest tier of expertise, that my condition set me apart in a way that demanded more than “just” primary care.

But sitting with that discomfort, I realized something important: this change is a milestone.

It’s not about being less cared for. It’s about HIV care becoming ordinary in the best possible sense. What was once an emergency requiring specialists is now a chronic condition that can be managed alongside everything else. Just like diabetes, high blood pressure, or asthma. And just as most people with diabetes don’t see an endocrinologist every month, most people living with HIV don’t need an infectious disease doctor at their side for every check-up. We need skilled, compassionate primary care providers who are equipped with the right training. That’s exactly what this new model is delivering.

The truth is, the biggest factors in HIV health today aren’t whether you have access to a specialist; they’re whether you can access care at all, whether your doctor treats you with dignity, whether you have support for housing, food, mental health, and transportation. Medicine has advanced so much that the day-to-day fight isn’t with the virus itself – it’s with the systems that surround care. And if we’re honest, it’s with stigma itself. Stigma kills.

When I was first diagnosed, I was in the hospital. A case of misdiagnosed stage-2 syphilis landing me in the ER. Thankfully, my visit to the ER is the reason I was diagnosed so soon after being exposed to the HIV virus. My infectious disease doctor told me they caught my HIV very early – he only saw a handful of cases each year like mine. I was lucky to be in his hands.

Around the time I was diagnosed in 2012, newer medications were available, and the medical advice began to shift towards starting treatment right away. Why? Because the side effects of the latest antiretroviral treatments (ARTs) were much milder, making it smarter to begin medication quickly to lower the viral load. This was all before the idea of U=U was introduced.

So, I’m very thankful for my infectious disease specialist, because he caught me “on the forefront of change.” Looking back, that was huge step forward.

Now, 13 years later, the fact that I don’t “need” one anymore isn’t a downgrade — it’s proof of progress. It means that medications work so reliably, and outcomes are so good, that HIV can finally be seen for what it is: not a death sentence, but a manageable chronic condition.

Of course, specialists still exist for rare or complicated cases – and that’s important. But the default has shifted. HIV no longer requires a small elite circle of experts. Instead, it belongs in the hands of everyday doctors, woven into the fabric of routine healthcare.

That’s not loss. That’s victory.

So yes, there was some grief in letting go of the idea that I needed a specialist. But in the end, this shift means something profound:

I am not defined by HIV. My care is not extraordinary because of this virus.

This disease is not terminal. It’s ordinary.

And that’s extraordinary.

Keep tellin’ the story,

Professor Peacock

Note: These are my thoughts and my story. I used AI to make helpful edits to my ramblings and online journaling, including some organization to be more blog-friendly.

Why did you attend our Zero HIV Stigma Day Event?

I work with HIV Modernization Movement – Indiana, which seeks to modernize Indiana’s HIV criminal and related public health laws. We celebrated Zero HIV Stigma Day this year with a special event on HIV stigma, sharing stories of how stigma shows up for Hoosiers living with HIV.

Zero HIV Stigma Day, observed annually on July 21st, is dedicated to reflection, education, and action against HIV stigma. This day highlights the harmful effects of HIV-related stigma on our society, particularly the barriers it creates to equitable access to life-saving care. It also serves as a rallying call for our communities to renew their commitment to protecting the dignity and well-being of every individual affected by HIV, regardless of their status.

We asked everyone who attended to share why they attended this year’s event. We used this as part of an interactive art exhibit on HIV stigma. There were other questions as part of this HIV Stigma Clothesline exhibit – I’ll post those later.